Sleeping Already!!

Since we have had such a busy week, Pie Pie is starting to have a hard time. She cried a little tonight about the pain in her legs but I am hoping that will pass. She took a nice long warm bath and went to bed around 6.  I just pray she sleeps through the night and feels better tomorrow!

Wow! Slow it Down!!

I can't believe it has already been a week since my last post!

 We have been really busy with family and friends! It is crazy how much we have done this last week! Luckily Pie Pie has been feeling great and even got her teeth checked and they look amazing! Gage's teeth are also good! Now for the weather to warm up a bit more and we would be having a super summer! Luckily we have my niece and nephew to entertain us tonight!

Busy Busy Busy!!

Sorry I didn't update this week! We have been crazy busy!! Gage only has four more days of being a second grader and one more day of being a wolf cub! Pie has also been keeping busy trying to make new friends and exploring the world around her. She has had several days where she hurts and she has also been popping a lot.  I hope it is just from the weather changes but I am not sure. I have been doing some research and think that the doctors are thinking she might have MED. Here is a link to one of the sites I found the most helpful..  http://www.perthes.org.uk/associated-conditions/   I just pray whatever it is they can give us some direction.
Today was as busy but the most exciting part was getting a little bunny to love! He was thrown into the wild by his previous owner and saved by my sister in law.  She called us thinking we would help him... She was right! He is living in a dog kennel munching on lettuce now! He seems happy! Gage and Pie really want him to live with us but I don't know if I can handle the constant headache from my allergies.. I guess only time will tell!
Hopefully, I will be able to blog tomorrow but we are very busy again with the cub scout cross over and finishing up an animal research paper! Wish us luck!  

What Fun!!

Yesterday I got a call from the Shriner's and they have made an appointment with their orthopedics doctor in August around the first part of the month. However, they are still struggling to nail down an appointment with the genetics doctor. I keep hoping to hear from them soon!!
Anyways, last night was tons of fun! Gage had a sleep over with a few other little boys for his birthday party! They even let Pie play with them! They had tons of candy and played really hard! Thankfully they went to bed around 11:30 pm!! Pie and I also had fun painting our nails and putting on glitter tattoos!
 Today was also a blast! We went to the park and had a little party with all the family and friends! Gage was excited for the presents and cake! Pie was more concerned about who she was going to play with!!  I think it was a great day! Pie even managed to get a little PT in! I hope she stays pain free tonight.  Gage and her are now at their grandma's house having fun with their sleepover! But I better get off here and get ready! We are going to Stomp!! So excited!

Pie had a long day!

Pie Pie had a wonderful day with one of her aunts. She went on a field trip with the forth grade class and got carried most of the time! Pie told me she had lots and lots and lots of fun!! After she got back from the field trip we went to get some seeds for our garden and then to party with her brother for his birthday! We partied by going for a walk then hanging out at McDonald's play land! We knew it was time to leave when birthday boy ran to the bathroom thinking he was going to be sick! So far he hasn't vomited but he still doesn't look so good! All in all we had a really great day! I think we are all ready for bed!

Another day!

Today was rather uneventful. Still no word from the Shriners about the appointment. Also, it rained most of the day so we were unable to play outside much... We did paint a while and lazied around most of the day watching tv! We did get a little motivated and cleaned up a few messes around the house! But mostly just a wonderful day to snuggle! Pie was totally pain free! Anyways, hope tomorrow is drier for Gage's birthday! He will be eight! Very exciting!

Still waiting...

I called the hospital and we discussed the appointment, however, nothing is set in stone.  We are thinking maybe in July but that can still change in any direction.. We did get a package of paper work that I have been filling out.  Hopefully, that part will be over soon! Other then that Pie has had a little pain but nothing major. She has even slept through the night all week!! She seems to have lots of energy and is having a great time helping around the house and riding her scooter.

Had a Great Weekend

On Friday, Pie Pie helped bake and decorate a cake with Gage and I for her grandma's birthday. We also did a few crafts and just hung out and had a fun day together! Saturday we went to my mom's house for her birthday. Pie hung out with us in the barn while we shaved the sheepies!

Self Portrait! She was bored!!

We sang "Mary had a little lamb" and she kept trying to pet them! I think she had a lot of fun! She was also very happy to get to eat cake and ice cream!! Luckily she fell asleep on the way home! She was a little sore when we got home so I gave her some Tylenol and headed her back to sleep! Today was also very exciting! Pie had a party in the park for one of her little friends from the Y. She got MORE cake and swing with her little friend. It was a little bitter sweet since they finally got to hang out away from the Y but her little friend also told her she is moving out of state next month.. I hope Pie handles it better then I think she will..

Silly Girl doing "yoga"!

But I guess we will cross that bridge when it comes! I also have yet to hear about the appointment so I think I will be giving them a call to see what is going on! The more I read about genetic disorders that can be linked with perthes the more I would like to get them eliminated out of my mind! Hopefully I will be posting our plans of the appointments tomorrow!

Still Nothing..

We have yet to hear when the appointment will be schedualed.. I plan to give them until Monday before I start making calls to find out what is happening! I would really like to know when the appointment is so I can get everything lined up for when we are gone. It would also be nice to know how many days we will have to be there! But I guess we will find out soon enough!
Other then waiting, the kids and I have been making plans for the summer! We can't wait for camping, going for walks and just getting dirty!! Pie keeps asking if the alligator is out at the zoo! I told her when he is out it will be camping time! Hope he is still gone because the nights are still really cold!! Gage thinks we can handle the coldness! I don't! But we won't make it to the zoo this weekend anyways so we should be good!

Gathering Information

Well I spent most of Saturday chatting with a lady that has a twelve year old daughter that went through a similar experience as we are going through right now.  Her daughter will be having surgery tomorrow morning at 6 so everyone please keep her in your thoughts and prayers! Anyways, she gave me a lot of good ideas and suggestions such as gathering a family medical history and writing a list of oddities about my Pie Pie.. She also suggested I write down things about my pregnancy with Pie. So yesterday I started to gather information from my husbands side of the family. I made it through his mom's side yesterday and his aunt helped me through his dad's side today! There really isn't much there that would be helpful that I am aware of but who knows! It might help the doctors. I plan to gather more information from my parents tomorrow. I just pray that whatever they find is something we can handle!
Today was also one of the first times that Pie was left out because she was unable to play with the other kids. They were playing on a trampoline and she isn't suppose to jump so she wasn't allowed over there. She cried for a while but got over it after she spotted a butterfly to follow! We went hunting! But I hope we hear something soon about her appointment.. I will keep you posted!

Confused...

So we met with the people from the Shriner's Hospital today.  I thought this appointment would be a simple step in the right direction. However, I am now more confused then before.  The doctor asked several of the same questions as Dr. S and he also had the same concerns and confusions with my Pie.  So this doctor is scheduling a normal appointment for Pie to meet with the Shrine's Hospital Peds / ortho doctor. But, he also wants us to meet with a genetics doctor. He feels that Pie might have a genetic disorder that is causing a perthes like reaction in her hips. He said he might be wrong but that what I had told him and the xrays being so symmetrical makes him feel that it is something more then just perthes.  I don't know what to think right now... I just know we will be on our way to Minneapolis again within the next month..

YIPPIE!!

OK! So I can breathe a little better now!! Dr. S just wrote telling me Pie looks like she is healing well! He also said that her left is healing a little faster then the right which might be why that one has some pain. I had also asked what percentage of her femur head was involved and he told me she had a significant case of perthes with 100% involved.  That was scary to hear but with her age and all the exercises we have been doing it will help her to avoid a surgery and help her heal the best! This was such happy news!! However, there is still a very long road ahead of us!!

Still Not Sure..

The radiologist here has said there is minimal changes in her xrays but there are some changes. I am not sure what the changes mean so I have been waiting for an email from Dr. S but have yet to get one. I am hoping to hear from him soon but it is hard to say.  I might have to try calling him if I don't hear something soon. However, I do think most of the change is very positive but want Dr. S to confirm this for us!!

But on a brighter note Pie Pie had an amazing weekend with some of our family coming over to have a pinterest craft weekend party! She really loved Saturday when it was a Grandma mommy daughter cousin day! Lots of laughs, great food and lasting memories!!  I just wish I would have taken some more pictures! I also hope Pie doesn't expect that much fun everyday now! But I better start finding my house again!

New xrays

 Pie was very brave and got her
new xrays! We had a great day and even went shopping at the mall for a little while!But back to the xrays... We don't know anything about them.... The radiologist hadn't finished his report by the time he was suppose to... I also have to email them off to Dr. Standard to see what he think! When I get more info I will inform you all but until then... I need sleep!!

I Hate the Night Before Appointments!!

Pie was great all day! She had lots of fun and is having a good time with brother and cousin! I, on the other hand, am a little worried about what tomorrow will bring.  Pie has an appointment to check her hips again! It's always exciting and scary! We figure that we will hear good news but I can't help to worry! So everyone pray for more good news!!! I'll post tomorrow hopefully with new x-rays!

Easter!!

We had a wonderful Easter! Everyone was healthy... minus my pink eye (thanks PIE!!) The bunny came and pooped out tons of candy for the kids! Then we had family over for a nice lunch! After everyone left Super dad took the kids out of the house so I could have a little alone time! When they got back we watched a little TV and then Pie and I went to play in her room! Gage and Dad had fun playing PS3! Pie pretended to be the bunny and hid candy all over! She thought it was great! Right now is sleepy time for the kids but they are not happy! I think the sugar high is starting to wear off! Hopefully Grandma comes soon to give them their Easter gift so they can go to bed ASAP!! Hope they are happier in the morning! Good night!!

Gotta Love the Today Clinic!

So my poor Pie was up crying all night. Even when she was sleeping she was whimpering.. I thought her legs were bugging her. She wouldn't talk to me only cry more. Today she has been really sleepy and lazing around. She told me her legs hurt but not as bad as last night. Around 2:30 Pie had glossy eyes and on the way to get Gage she told me her eyes had drama! I didn't think much of it but by the time we got home you could see she had pink eye so I took her in to the Today clinic.  They told me she had pink eye that was caused by her strep throat.  I didn't know she even had strep.. Hopefully the med will help her feel better soon.  I also have exciting news about getting her an appointment on April 20th with the Shriner's doctors that come to town. I wasn't sure if it was the right thing to do last time they were in town. Now I think it is smart to get her involved with them just in case she needs more help than what our doctor here in ND can handle! Hopefully more good news to come!

Please no more long nights!!!

So today was a lot of fun. We played and cleaned up the yard. We also went to see my sisters and brother inlaws place! The kids ran around and had a blast. However, on the way home Pie started to cry about her legs and is now sad because she hurts. I gave her a long warm bath but still seems a little sore. I am hoping she sleeps soon and feels better in the morning. I am glad that her next appointment is coming up but they always make me a little nervous.. I always wonder if I have done enough to help her..

HA HA HA!!!

What a weekend! Wow! I think all the drama died down! So happy! Anyways, between basketball, cub scouts and itty bitty sports we have been busy! Gage also had a few friends over yesterday. They had a small mishap with my car and a basketball hoop.... Needless to say I get my yard cleaned by the three of them! Pie Pie also has been having fun with friends too! She played with her cousins most of Friday and on Saturday she got to hang out with her little boy friend at the game! She is trying to play pranks on us all today! She has been trying very hard to get us all! She came into the kitchen, grabbed my sun glasses and ran as fast as she could to my room! Giggling the whole way back she looked at me and said Happy Fools Day! lol!! My glasses were under the bed! She also has been telling me how my flip flops are untied! She also keeps stealing Gage's stuff and hidding it! Hope he finds it all!
Thank God she has been feeling good most of the weekend! Her legs are a little sore from playing so much but seems to be doing good now! Hopefully we will get good news on the 11th! She has an appointment that day! But I better get going! Lots to do... and find!!! Happy fools day!

Last swim lesson for this session!

We sadly did not pass. She couldn't float on back and flutter kick? I don't know what that really is but I will be looking it up to make sure it isn't because of her perthes that has stopped this from being done! Gage also didn't pass. I think his worst thing he couldn't do was not listening to the teacher! Grrrr... I told him he could have done that right and he agreed that he should have tried harder.
I also wanted to take a moment on here and mention the Perthes momma drama and tell all of them that regardless of our differences it is all about our children in the end. We need to learn to stand together and not on top of each other! I know there is not just one to blame but several from what I have seen and hope we can work it all out! If not life will only get more lonely...

What an amazing weekend!

Our weekend started on Thursday night after swim lessons were all done! At least that is when Pie Pie, Gage and I left with one of their aunts to go to Minneapolis. We stopped in Saux Centre Thursday night because that's where their dad was working! Pie Pie was so sore by the time we got there but she fell asleep with in an hour with a little medicine and an ice pack.. Once she was asleep everyone else was able to fall asleep rather quickly!
On Friday morning Pie, Gage and I went down and had some continental breakfast then went swimming for a few hours! A group of older women came in to do there morning water aerobics routine and they all kept telling me what wonderful children I had. They also couldn't get over how good Pie could swim all by herself! (We had forgotten her bubble in the car) After realizing the time, the kids and I ran to the room, showered and packed up all our stuff to head to Monticello. Once we got there we dropped our stuff in the hotel room and then headed to the Mall of America. We started off by getting something to eat then shopping to pass the time before we got to see my niece. The kids were bummed that we didn't take them on rides this time but Pie loved the Disney store and Gage liked looking at all the sports and video game stores! Around 6 we met up with my niece and her mom at the MOA and went and eat at Chipotle.
 We then headed down to Sea Life. It was a wonderful place! The kids loved seeing the fish swimming all around them and all the different types! I loved the jelly fish room and the way they had it set up.
Once we finished at Sea Life we told my neice good-bye and headed back to the hotel for another long swim with the kids! This time I remembered Pie's bubble for swimming so she was able to swim much further without my help! However, she still liked to take it off so she could jump into the pool and touch the bottom! After swimming we decided it was time for bed! We all slept pretty good but Pie was a little restless.
Saturday morning was full of swimming too! Once that was out of our systems we went for pizza and my neice and her mom met us there! We talked for awhile then headed to the outlet mall in Albertville. Gage and Jesse were only up for shopping a little bit so they ended up back at the hotel a lot earlier then Pie, my neice, her mom and I! We shopped for hours and found lots of really cute clothes! We finished up shopping and headed back to Monticello. We found Jesse sleeping so we took Gage and went to an arcade and resterant for supper. It was fun for all!
 After that my neice, Gage, Pie and I headed back to the hotel for a fun little sleepover! We went swimming, ate cookies, and watched the movie HOP. Well some of the movie!! We ended up falling alseep watching it!
On Sunday we knew our weekend was running out of time so we wanted to make the most of it! We went to the Sculpture Garden and the Como zoo. Both were free and great fun! We ended our time with my neice in Edina at a cute little burger place I fell in love with the last time I was in the cities!
 We then parted ways and we headed back to the hotel for MORE swimming! After we were done we showered and the kids went to bed while I packed up our stuff to start heading home the next morning... I then fell asleep too!
 The last day... Monday... we spent this eating breakfast at I Hop and putting our stuff in the car. It was sad leaving but it was also very exciting to be going home! The wind was insane so I drove straight through with only one stop for gas. When we got back home we dropped our stuff at home and headed out to get my dogs. One the way home we stopped for Mcd's. At home we watched tv and ate! If the storm wouldn't have gotten so bright and loud the kids would have fallen asleep after eating but instead they were both up tell almost midnight! Today Gage woke up easly but Pie was a pill to get up!
 Gage is excited to show off the journal he wrote and all the brochures of the places we saw and pictures of his neice at school today. Pie is now enjoying watching her movie and laying around! Hope the energy level picks up a bit before the swimming test today!

Good day!

Well today Pie had a great day! She didn't seem to have any pain again!! Pie had fun helping me out most of the day!  She is excited for our big weekend! She can't wait and neither can Gage! I think I should have left them in the dark a little more though because they are having issues sleeping now! Go figure! Well hopefully I will be able to find some time to post a bit this weekend but if not I will be back to it Monday! Have a great weekend!!

Show off!

 Pie did really good at her swimming lessons. She really loves the water! Gage also did wonderful at his lessons! He has come a long ways! Hope that they don't miss the lessons to much this summer! Anyways after all the swimming both the kids were starving so we got some subway and went back to the Y for Gage's basketball practice. Gage wasn't really into the game but had fun anyways.  Pie Pie found a little boy to play with. She followed him everywhere and they played catch. They also jumped off the step a few times and Pie started to walk weird. I am hoping that she will stop soon but she doesn't seem to be in pain from it.. I hope I am right! But on a brighter note I was able to share a little bit about Perthes to another parent that has a son in practice with Gage. She had never heard of anything like it before. It was also nice to be able to chit chat with another parent for a while! But now that the kids are sleeping I better get caught up on some work!

Not cool Pie Pie!!!

The last couple nights Pie has been waking up in the middle of the night to ask if she can lay in my room. I am not really sure why she wants to do this now but she does it in a way that drives me nuts! After I am sleeping she comes in my room and turns on the light! Not only do I wake up in a confused panic but Kitty (our black lab mix) freaks out too! What a nightmare! LOL!! However, other then that she seems to be doing really good! She has swim lessons tonight and can't wait to get in the water! She only has a few lessons left but hopefully we will be able to go camping and swimming a lot this summer!

My head hurts so this will be short!!

I just wanted to let everyone know that so far last night and today Pie seems to be pain free! I am very happy for her! I hope that it can continue on being like this! Besides it is a lot more fun to tell you about the fun adventures we go on than all the pain my poor Pie has!!

Just Keep Going!

So Pie had a good night last night but her aunt said she woke up a little sore. She gave Pie some medicine and after church she seemed to be doing ok again. Pie did do her Itty Bitty Sports which was it was t-ball day but I could tell she wasn't feeling the greatest. I felt bad that I had made the wrong choice for her but she had a lot of fun and took it easy the rest of the day! Actually, Pie sat in the back of my vehicle for two hours while Gage and another scout went door to door collecting a ton of food for local food banks! It was so great to watch them give to our community! Pie also enjoyed watching them try to carry the big bags of food! She thought they were silly! But now we are home and Pie is laying with an ice pack and took some medicine. I am praying she sleeps good and wakes up feeling refreshed with little to no pain!

I don't get it!

OK I don't understand, Pie woke up around midnight in pain. I gave her some medicine and she continued to get up countless times last night from pain in the left hip. She had been complaining about her right hip the day before but now it's the left... Anyways, she continued to tell me she hurts and tiptoed around until Gage's basketball game. Pie also said laying down hurt her worse then moving around... That isn't normal for her.. But during the game she seemed to be feeling better. However, I told her auntie who is going to watch her tonight to keep giving her medicine every 4-6 hours and to keep her from over doing it today. Hope that will help her with the pain. I am thinking this must mean that she is having good regrowth right now?!?! But I am not really sure.. Thankfully Pie will be getting her x-rays again in April!

Great day!

Wow! 80 degrees in the middle of March in North Dakota is crazy! I can't think of a time it was this nice! Anyways, Pie loved it and we had a great time outside today. She seemed to be pain free today but we still took it pretty slow so she could feel her best for the weekend.  So, we spent the night trying to make egg things with flour, Sta Flo, stings and balloons! What a mess but so much fun!! Hope tonight goes as great as today did!

Regrowth?

Poor Pie Pie woke up in pain but around noon seemed to be doing better. We painted to pass some time! She loves arts and crafts so that helps a lot! After we finished painting we checked the mail and were happy to find our L.C.P.D. shirts had finally arrived! Pie insisted on putting hers on and having me and her brother wear ours too! We decided we needed to do a family picture and get it on facebook and on here! She was very proud of her name on the back but was sad it didn't say Pie Pie!
After the excitement of the shirts died down it was time for Pie's swimming lesson. She really likes being in the water! She also loves being with the other kids. Pie is progressing well and has already passed two of the levels! She only has two lessons left before her next test but she has no worries about passing or not..
Once swim lessons were over we came home and ate. Pie and Gage went with their dad for a while so I could have a few minutes of peace! When they got home I helped Gage do some homework and then we finished one of the best books ever (The Invention of Hugo Cabret)! We can't wait to see the movie now! Even while tucking them in, they couldn't stop chattering about watching the movie and how good the book was! Hopefully they have great dreams tonight!

It's been a long time!

So I have been thinking a lot about deleting this blog but have decided to keep it up. I also decided that I will start writing on here more! School has slowed down for me and the kids miss helping me write this! So I think it is only fair to start up again! Well stay tuned for more updates!!



I did want to post the xrays we had done in January 2012...

What a great life!!

We spent last Monday at my mom's house. Gage had the day off and Pie really missed Sparkles. So we spent the day doing horse rides and petting puppies! Later that night Pie complained of being a little sore but I think it was just from all the excitement of that day!

The rest of the week flew by. With school, chores and PT, there isn't much time to blog! Pie did have an appointment last Friday. We got her ROM checked and she is above average for that! Pie also got some x-ray's done. The doctor was our normal doctor and we are very happy that she was willing to check her ROM and to get the xray's to us that day. I went home that night and e-mailed the x-rays out to Dr. Standard and a quick note about a silly bill.   I wasn't expecting to hear back about the x-rays until the chat this coming Thursday but to my surprise he emailed me today to tell me about the bill issue and he had also looked at her xrays! Anyways, this is what he emailed me

"The xrays look very good- the hips are well contained in the cups- as long as she has good motion with her exercises, she is progressing nicely and should heal well."I was soooo happy when I read the email!  This is really great news! But, I am also hoping that the pains she has will go away before the colder months hit. It seemed to be much harder on her during the colder months than the summer months. But I should really get back to school work since Pie is hanging out with her daddy at work right now!