Wednesday, May 18, 2011

My First Blog

Hello everyone, My husband and I have decided to share Pie Pie's adventures through Perthes.  For those of you unsure of what Perthes is don't feel bad since it is a rare condition.   "Legg-Calve-Perthes disease is a childhood condition associated with a temporary loss of blood supply to part of the hip joint. Without adequate blood flow, a process can occur in which the bone becomes unstable, and may break easily and heal poorly. " ~ Mayo Clinic.  There is also very little information on what causes this condition.
Pie Pie or Kadence is our three year old daughter.  When she was only eighteen months old, she woke up from a nap and couldn't walk. I took her to doctors and chiropractors.  They thought she might have a cold in her leg and sent me home after taking some xrays. She began to walk about a week later. Throughout the next year and a half Pie Pie would limp and cry from pain. We took her back to the doctor on and off but they thought it might just be growing pains. About a month before her third birthday we took her back to the doctor and requested xrays even though our doctor felt she might be faking it. We got a phone call later that day telling us we had to see the bone and joint specialist.  So five days after she turned three we were told she had Perthes. The specialist seemed to be really shocked by the xrays and told us she had to limit her activities and do physical therapy five times a day. Since then we have been trying to learn all we can about perthes. We have found the most helpful information to come from others stories!  I am part of a support group on Facebook and couldn't imagine life without it.  I have learned and been lifted up by this group! Saying thanks doesn't seem to be enough! We are hoping that Pie Pie's adventures will be able to help others!  

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