Thursday, June 2, 2011

All I Can Say Is WOW!!

I started today off really discouraged! Pie Pie was really stiff and super crabby! Our doctor appointment wasn't one of the best and we were just overwhelmed! We had an appointment at the WIC office and we let off a little steam on them! Good thing they like us! After that I spent most of the day on the phone trying to get all of Pie Pie's medical records and line up the Dr appointment that we might not get until November!?! I thought it would be smart to make the doctor refer me to another doctor in the same clinic! I felt that one might be more qualified and her waiting list seems to agree! Luckily our whole day turned around thanks to a chat with a wonderful doctor! The online chat with Dr. Shawn Standard started out really scary! I felt like a teenager in a new school or something! But I soon realized that the people I came to know through the perthes support group on face book were also on the people on the chat! It was amazing how much it helped me feel at peace! After showing Pie Pie's latest x-ray's to Dr. Standard he had asked what her growth percentile was.  I guess sometimes bilateral perthes is misdiagnosed and could be another bone issue.  However he does think that it is still perthes! He also offered to look at Kadence in his office in Baltimore for free! I still have to figure out how to get there and the hotel but I am calling tomorrow to set up the appointment! This will be the first time someone will see us and they will not only know what perthes is but they have treated it too! OH and to top off this wonderful night I have made several friends with other parents of children with perthes and one is even trying to help me get free tickets to Baltimore! I feel like everything is going to work out and my little Pie will be all better someday! It feels like floating on cloud nine! I just hope Pie Pie does too!!

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