"Don't let what you can't do interfere with what you can do" ~Author Unknown.
Wednesday, August 29, 2012
Feeling Better!
Well last night was long! However, today Pie seems to be doing really good! They have her on tons of antibiotics and pain killers so she is also really crazy!! She likes to run from one end of the house to the other laughing at nothing! It is really wild watching her! I am hoping that she keeps getting better and back to normal! But Pie is going wild and not calming down for bed so I better go get her relaxed!
Tuesday, August 28, 2012
My Poor Babies!
Well yesterday Gage was told he had pink eye and strep throat.... UGH! Then they told me Pie Pie had an ear infection and strep throat too. Both kids had high fevers and started their meds right away! However, last night at about 4 am Pie started having some pain in her back and side. This pain came on and off until about 930 when it lasted for an hour straight and I decided this wasn't normal pains for her or a cold. So we went back to the clinic where they informed me that Pie didn't have strep or an ear infection. They did run her blood and urine. They also did an x-ray and ultrasound to make sure everything inside was ok. We were at the clinic a really long time when they finally came to tell us that Pie has a Kidney infection. They gave her two shots in the legs and now she is really sore from them and the infection.. But I better get off here she is starting to get worse..
Thursday, August 23, 2012
Great News!
Pie had her appointment today and her eyes are not involved with her joint issue! So we can now rule out Sticklers and move on! She might need glasses but we are not going to worry about that until next year and hope she out grows it! Pie is also excited to know she doesn't have any appointments planned until November! It will be a nice break from all the doctor appointments we have been having!
Gage also had a great day on his first day of the 3rd grade! He said recess and lunch are still his favorite subjects but the other subjects are ok too! LOL! He also likes his teachers! But he has karate in a little while so we better get moving!
Gage also had a great day on his first day of the 3rd grade! He said recess and lunch are still his favorite subjects but the other subjects are ok too! LOL! He also likes his teachers! But he has karate in a little while so we better get moving!
Wednesday, August 22, 2012
Another Appointment
We have still been very busy! We went camping and road Sparkles a few times. Pie wishes Sparkles could move here but I told her our yard wasn't big enough! We also finished any school shopping and got the house and yard all cleaned up! Yesterday was busy too with open house for Gage and a doctors appointment for Pie. Pie's appointment went well and they are sending us off to see an eye doctor tomorrow to check Pie for Sticklers syndrome. I really don't think this is what she has but I guess we need to make sure I am right. This syndrome can cause children to become blind, deaf and comes with the joint issues like Pie has. But I am sure I will be able to report good news tomorrow on that! So then we will just be waiting on the genetic tests to come back! But I suppose I better finish my other chores tonight! Gage starts the third grade tomorrow!
Thursday, August 16, 2012
Getting Ready!
We have been home for about five days now and we have been getting back to our busy ways! Pie has done her PreK registration and will be starting the morning class in September! She is very excited to be going to school! But, we are still trying to fit in as much fun in this summer as we can! So we have gone to Snoopers and had a great play date!
Gage got to sleepover at grandma's house one night but poor Pie had to miss out. She fell on her head and got a huge bump so she stayed at home with me! This weekend we hope to go camping a little! We also got all our school shopping finished and started to talk about the different goals and plans we all have for this school year! We are all very excited! I just hope that those test results come back and tell us good news!
Monday, August 13, 2012
I Can't Believe I Forgot!!
With all that had been going on I completely forgot to add her new x-rays! They look great! Pie Pie is in the regrowth phase and they even told us she doesn't have to do all her PT!! I still plan on doing it some but not nearly as much! We are very excited about this news! We are hoping this is almost the end of our Perthes journey! With any luck we will find out soon enough!
Sunday, August 12, 2012
Continue of Great Week in MN!!
Thursday morning Pie had her appointment with the genetics doctor at 9am in the Minneapolis Children's Hospital. We had a little wait but then they brought us back to the area to check her blood pressure and weight. Pie was scared and upset a little so they ended up having to do her blood pressure twice to make sure her numbers were in the normal range (which they were). After a short wait in the room a nurse, doctor, student and another lady came in to the room. The nurse just talked a little and got Pie some juice to help her calm down some. The doctor started to ask for a history on Kadence's life and my pregnancy with her. They decided to run a few tests on what I had said then the doctor rambled off some rather large confusing words to the student! I was needless to say very confused! Then the doctor and student left and let the other lady take down all our family history. After that the doctor came in and told me she felt Pie might have Multiple Epiphyseal Dysplasia. There were a few other things she mentioned but felt that this was the most likely to be what Pie has. (http://demo.perthes.org.uk/?page_id=180)
The doctor also said she wanted me to take Pie to an Opthamologist to check her eyes out. We still have to make that appointment but will do so soon! They sent us down to lab again for Pie to give her blood one more time. They poked Pie in the same arm they took blood from the day before and they didn't get anything so the had to poke her again in the other arm. I felt horrible for Pie she kept asking me to do it and I couldn't help her understand that I didn't know what I was doing.. But Pie did get herself a new little bear for doing so good! The blood they took will help run 6 to 10 different genetic tests. What they said to me is they are looking for one of Pie's genes to be miss spelled. They also said it could be something that they have never seen before which is kind of scary.. This will take 40 days for the first one to be done and 10 days for each following test. So we hope to hear something back in 40 to 90 days. So we will keep praying for the best news.
This appointment lasted about 4 hours and we were all ready to do something fun so we choose to check out the Minneapolis Science Museum! It was full of cool stuff! Pirates, human body parts, a mummy, two headed turtle, guitars, flames, boats and much more! We spent a long time there checking out all the amazing stuff! All the kids loved it and I have to admit I thought it was great too!
It was a lot better then the school shopping we did in Albertsville on Friday or all the driving we did Saturday to get home! But Friday and Saturday weren't all bad! We got to spend them with some of our favorite people and we got to eat really yummy food! My favorite was my monster omelet and Pie loved her hot cocoa at the Original Pancake House! But the end of our time in Minneapolis is always sad with all the good byes..
The doctor also said she wanted me to take Pie to an Opthamologist to check her eyes out. We still have to make that appointment but will do so soon! They sent us down to lab again for Pie to give her blood one more time. They poked Pie in the same arm they took blood from the day before and they didn't get anything so the had to poke her again in the other arm. I felt horrible for Pie she kept asking me to do it and I couldn't help her understand that I didn't know what I was doing.. But Pie did get herself a new little bear for doing so good! The blood they took will help run 6 to 10 different genetic tests. What they said to me is they are looking for one of Pie's genes to be miss spelled. They also said it could be something that they have never seen before which is kind of scary.. This will take 40 days for the first one to be done and 10 days for each following test. So we hope to hear something back in 40 to 90 days. So we will keep praying for the best news.
This appointment lasted about 4 hours and we were all ready to do something fun so we choose to check out the Minneapolis Science Museum! It was full of cool stuff! Pirates, human body parts, a mummy, two headed turtle, guitars, flames, boats and much more! We spent a long time there checking out all the amazing stuff! All the kids loved it and I have to admit I thought it was great too!
It was a lot better then the school shopping we did in Albertsville on Friday or all the driving we did Saturday to get home! But Friday and Saturday weren't all bad! We got to spend them with some of our favorite people and we got to eat really yummy food! My favorite was my monster omelet and Pie loved her hot cocoa at the Original Pancake House! But the end of our time in Minneapolis is always sad with all the good byes..
Great Week in MN!!
We got to Minneapolis on Tuesday. We found our hotel and went for a long swim. After that we went for supper in the hotel and played at the arcade! We had a lot of fun and released a lot of built up energy before bed time! When we got up on Wednesday we hurried up and got ready to find the hospital. We located the Shriner hospital but thought we should find the Children's hospital too. After finding them both we headed back to the Shriner hospital and checked in. They got Pie Pie back for x-rays right away! We finished up the first set of x-rays and they made me a CD while Pie got to pick a prize for being so good. She picked a bag of make-up but she didn't have anytime to look at it since they needed to do a few more x rays of her hips. They sent us to the another area to have her height, weight and blood pressure done. The lady there was really nice and helped us to find the next lady that took poor Pie to the lab to get her blood drawn.. She was scared and really didn't want it done but she did a great job! Pie even got a new art box out of the blood work!
We went for a quick lunch break and let the kids play at the park and then up in the game room at the Shriner's. They had a lot of fun and Pie even had a good time!
She wasn't very happy to have to go met with the doctors again but she did a great job letting them test her walking and ROM. She seems to have good ROM and only a little weakness in her muscles. That is why her knees knock together to bad. The Doctors aren't sure what Pie has but still think it would be best if we treat it like Perthes until we know exactly what we are dealing with. They suggested we still see the Genetics people the next day and that we check back in with them next time they come to Bismarck or if they need to see us sooner Minneapolis again. After that nearly 5 hour appointment, we left feeling hopeful about what Pie might have but still a little worried.
We decided to help our minds get off the appointments by going to the Mall of America! We went shopping, got some really yummy chocolates, did a build a bear, and went through the Mirror Maze! The Mirror Maze is really neat, kind of scary and mildly nauseating!
We also got another stuffed animal to add to the over sized animal hoard in Pie's room! But all in all we had a great time! We finished the night off by having my neice spend the night at the hotel with us!
Tuesday, July 31, 2012
Wow! Time has gotten away from me!
I can't believe how fast this last week flew by! We have been busy busy busy!! We have gotten our hotel booked for Pie's appointments and all her records in order! We also have lined up a house and garden sitter! Just a few more things left to do before we are ready to leave! Can't believe the appointments are next week already! So far she seems to feel good with the occasional painful popping in her joints. I am hoping that she keeps going this way!
Anyways, Pie got some very exciting news last week! She was excepted into a preschool! Pie wants to go shopping and then go to school! She doesn't want to wait anymore! LOL! I am also very excited for her. She gets an evaluation from them after we get back from MN and then she should meet her teacher! Gage has been being awesome too! He told Pie that if she "is naughty she will have to sit on the bean bag and brother had to sit there A LOT!"
Gage did have a heart break this week. When he came out of his friends house he was expecting his bike to still be sitting there but it wasn't. Someone stole his bike. Hopefully we can find it!
Anyways, Pie got some very exciting news last week! She was excepted into a preschool! Pie wants to go shopping and then go to school! She doesn't want to wait anymore! LOL! I am also very excited for her. She gets an evaluation from them after we get back from MN and then she should meet her teacher! Gage has been being awesome too! He told Pie that if she "is naughty she will have to sit on the bean bag and brother had to sit there A LOT!"
Gage did have a heart break this week. When he came out of his friends house he was expecting his bike to still be sitting there but it wasn't. Someone stole his bike. Hopefully we can find it!
Monday, July 23, 2012
Thank You!!
I feel that the rummage sale was not only successful at getting us a little financial help but it also helped spread the awareness of LCPD! We had several people asking questions and being very interested in Pie's story. I think it helped me to grow a lot too! It was just amazing!! Thank you everyone!
Sunday, July 15, 2012
Rummage Sale This Weekend!
Pie Pie and Gage had an excellent time camping with their grandparents. I also had a great time catching up on life! I managed to get the house clean, bills paid, and get organized enough to have the benefit rummage sale for Pie! I still have a few things left to do but it should be easy! I just hope we get a good turn out! Pie wants to make pictures and bracelets to sell at it too! I think we might work on that tomorrow! Maybe that will help her not be so upset with me. I made her mad by starting her PT again. She didn't have to do it when she was camping. I think she really liked the break from it but hopefully we can get back in the swing of things and have a great week!
Sunday, July 8, 2012
Things Are Going Good!
Things have been going well for Pie. We have heard little complaints but nothing major. However, she has been popping loudly but doesn't seem to hurt her to badly. She kind of sounds like an old lady crackling.. It turns my stomach every time I hear it but I suppose it could be much worse! Anyways other then that we have been really enjoying outside! We have been having BBQ's and going to the river. Today we had a picnic with Grandma by the river then went for a long walk! The kids found tons of fish bones they insisted on bringing home... Yuck! Then we went to the Crab Apple for some really yummy ice cream! Pie got the bubble gum kind! After that we went to the lake for a while until we decided to go see if Sparkles wanted to take the kids for a ride! Sparkles was happy to see us and gave both Gage and Pie a nice long ride! I think they missed her too! I am hoping we can get back to Grandma's soon but we have a very busy week ahead of us. Also, we might have a rummage sale next weekend to help with travel expenses and bring some awareness to perthes disease. I realize we are not sure what Pie has but I still think it is very important to bring some awareness of Perthes!
Wednesday, July 4, 2012
Six Days and Eleven States!!
The week before last was very stressful for our family so we decided to tag along with my hubby on his work trip! I was a little concerned how Pie and Gage would handle 10 hours a day in a car but they both did wonderful! We made it a point to swim as much as possible and to get out of the car do some of her PT. We didn't do all of them but we did what we could! We also explored at every stop we made! I think it helped us all to get out of town but was even better when we got back home!!
On Monday, we let Pie and Gage invite all their little neighborhood friends over for a BBQ and cake for their dad's birthday! We did a little bon fire and made smores! We also had fireworks until the cops came and told us we couldn't! Pie and Gage thought it was really funny that mommy got in trouble!! It was a lot of fun and through all of that we never heard Pie complain of pain in her legs! She did however mention her arms were bugging her.. I am hoping that it is growing pains but something inside of me worries it is more. I am very thankful that we have the genetics and orthopedic appointments coming up! But I better get off of here and have fun on the 4th of July! Hope you all have a wonderful day!!
On Monday, we let Pie and Gage invite all their little neighborhood friends over for a BBQ and cake for their dad's birthday! We did a little bon fire and made smores! We also had fireworks until the cops came and told us we couldn't! Pie and Gage thought it was really funny that mommy got in trouble!! It was a lot of fun and through all of that we never heard Pie complain of pain in her legs! She did however mention her arms were bugging her.. I am hoping that it is growing pains but something inside of me worries it is more. I am very thankful that we have the genetics and orthopedic appointments coming up! But I better get off of here and have fun on the 4th of July! Hope you all have a wonderful day!!
Friday, June 22, 2012
What A Day!
The kids and I spent the morning playing in the yard. Then we had lunch at McDonald's play land! I was exhausted by the time we finally made it home! I was up for a nap but the kids thought it was time to play a little more! So we compromised and they played while I read through some mail that had been piling up! That is when I found the itinerary for the appointment Pie has on August 8th. I was surprised that they really sent out one but also shocked to find out they weren't messing around when they said 3 to 4 hours for the appointment! I am now curious how long the genetics appointment will last. I think we might want to search for some mess free activities to come with us on this one! We also need to start figuring out our plans..
Anyways, Pie and I are having a girls night tonight! We grilled and set up the tent! We were going to stay in it tonight but it stinks and looks like it might rain.. So we ran to DQ for some ice cream and stopped by our garden to hydrate it! We are now snuggling and watching some cartoons! But bedtime is fast approaching and hopefully we can both sleep amazing!!
Anyways, Pie and I are having a girls night tonight! We grilled and set up the tent! We were going to stay in it tonight but it stinks and looks like it might rain.. So we ran to DQ for some ice cream and stopped by our garden to hydrate it! We are now snuggling and watching some cartoons! But bedtime is fast approaching and hopefully we can both sleep amazing!!
Wednesday, June 20, 2012
August Appointments Set!
Pretty Murphy!! |
Noone was safe! |
I could feel how hot they were and gave her some medicine before she even started to cry about them. I am glad I did because it wasn't long after I gave her the meds she was crying in pain.. But she is sleeping now and seems to be doing good! Hopefully it was just to much fun that had her hips bugging her! Well better get going have a busy day ahead of us!
Thursday, June 14, 2012
Hmmm What To Do...
We are still waiting to hear from the Shriner's about when the genetics appointment is going to be. Hopefully they get back to me soon! I am also having a hard time deciding what to do about Pie's appointment with her normal doctor. Pie would normally be seen by her doctor in July but with the other appointment in August, I am unsure if I should cancel or just do both.. Maybe I will have to see what Tubby has to say about it!
I am kind of concerned about all the popping she is having in her legs.. Today she didn't have to much popping but we also didn't do much for physical activity! We played with Pancake (the bunny), worked on our garden, and watched Gage! It has actually been one of our calmest days since school let out! Maybe tomorrow we will do a pinterest party!
Saturday, June 9, 2012
What a Week!
This summer is just going to be crazy! Pie has learned to try to get her way by asking over and over and OVER again for whatever it is that she wants!
She has also learned what a day of grounding is like.. I guess her and Gage got to do that together! My house shined after they were done! They went right to bed when they were done! I think they must have been tired! Luckily, that was only a small part of this week!
We also went on a nice family trip to Fargo (thanks to Jesse's work)!
The kids loved playing at the park and swimming! I think they also liked shopping! I know I enjoyed going to some different shops! Pie did have a little pain because of her hip popping. It only seemed to bug her a little while. I gave her some Tylenol and it helped so much she fell asleep eating her dinner! She even slept good that night too! But we are all very happy to be home and back in our own beds! Maybe this week will involve going to my parents house, the zoo, and another picnic!
Sunday, June 3, 2012
Staying Busy!
We have been very busy rummaging and having BBQ! Also, today the kids went to the water park with their dad. They both got sun burns but Gage's is the worst. They got aloe on and went to be with out much fuss! Pie has been tripping a lot and you can hear her hips popping. She doesn't seem to be in pain but it is so hard to tell some days..
Thursday, May 31, 2012
Sleeping Already!!
Since we have had such a busy week, Pie Pie is starting to have a hard time. She cried a little tonight about the pain in her legs but I am hoping that will pass. She took a nice long warm bath and went to bed around 6. I just pray she sleeps through the night and feels better tomorrow!
Tuesday, May 29, 2012
Wow! Slow it Down!!
I can't believe it has already been a week since my last post!
We have been really busy with family and friends! It is crazy how much we have done this last week! Luckily Pie Pie has been feeling great and even got her teeth checked and they look amazing! Gage's teeth are also good! Now for the weather to warm up a bit more and we would be having a super summer! Luckily we have my niece and nephew to entertain us tonight!
Saturday, May 19, 2012
Busy Busy Busy!!
Sorry I didn't update this week! We have been crazy busy!! Gage only has four more days of being a second grader and one more day of being a wolf cub! Pie has also been keeping busy trying to make new friends and exploring the world around her. She has had several days where she hurts and she has also been popping a lot. I hope it is just from the weather changes but I am not sure. I have been doing some research and think that the doctors are thinking she might have MED. Here is a link to one of the sites I found the most helpful.. http://www.perthes.org.uk/associated-conditions/ I just pray whatever it is they can give us some direction.
Today was as busy but the most exciting part was getting a little bunny to love! He was thrown into the wild by his previous owner and saved by my sister in law. She called us thinking we would help him... She was right! He is living in a dog kennel munching on lettuce now! He seems happy! Gage and Pie really want him to live with us but I don't know if I can handle the constant headache from my allergies.. I guess only time will tell!
Hopefully, I will be able to blog tomorrow but we are very busy again with the cub scout cross over and finishing up an animal research paper! Wish us luck!
Today was as busy but the most exciting part was getting a little bunny to love! He was thrown into the wild by his previous owner and saved by my sister in law. She called us thinking we would help him... She was right! He is living in a dog kennel munching on lettuce now! He seems happy! Gage and Pie really want him to live with us but I don't know if I can handle the constant headache from my allergies.. I guess only time will tell!
Hopefully, I will be able to blog tomorrow but we are very busy again with the cub scout cross over and finishing up an animal research paper! Wish us luck!
Saturday, May 12, 2012
What Fun!!
Yesterday I got a call from the Shriner's and they have made an appointment with their orthopedics doctor in August around the first part of the month. However, they are still struggling to nail down an appointment with the genetics doctor. I keep hoping to hear from them soon!!
Anyways, last night was tons of fun! Gage had a sleep over with a few other little boys for his birthday party! They even let Pie play with them! They had tons of candy and played really hard! Thankfully they went to bed around 11:30 pm!! Pie and I also had fun painting our nails and putting on glitter tattoos!
Today was also a blast! We went to the park and had a little party with all the family and friends! Gage was excited for the presents and cake! Pie was more concerned about who she was going to play with!! I think it was a great day! Pie even managed to get a little PT in! I hope she stays pain free tonight. Gage and her are now at their grandma's house having fun with their sleepover! But I better get off here and get ready! We are going to Stomp!! So excited!
Anyways, last night was tons of fun! Gage had a sleep over with a few other little boys for his birthday party! They even let Pie play with them! They had tons of candy and played really hard! Thankfully they went to bed around 11:30 pm!! Pie and I also had fun painting our nails and putting on glitter tattoos!
Today was also a blast! We went to the park and had a little party with all the family and friends! Gage was excited for the presents and cake! Pie was more concerned about who she was going to play with!! I think it was a great day! Pie even managed to get a little PT in! I hope she stays pain free tonight. Gage and her are now at their grandma's house having fun with their sleepover! But I better get off here and get ready! We are going to Stomp!! So excited!
Tuesday, May 8, 2012
Pie had a long day!
Pie Pie had a wonderful day with one of her aunts. She went on a field trip with the forth grade class and got carried most of the time! Pie told me she had lots and lots and lots of fun!! After she got back from the field trip we went to get some seeds for our garden and then to party with her brother for his birthday! We partied by going for a walk then hanging out at McDonald's play land! We knew it was time to leave when birthday boy ran to the bathroom thinking he was going to be sick! So far he hasn't vomited but he still doesn't look so good! All in all we had a really great day! I think we are all ready for bed!
Monday, May 7, 2012
Another day!
Today was rather uneventful. Still no word from the Shriners about the appointment. Also, it rained most of the day so we were unable to play outside much... We did paint a while and lazied around most of the day watching tv! We did get a little motivated and cleaned up a few messes around the house! But mostly just a wonderful day to snuggle! Pie was totally pain free! Anyways, hope tomorrow is drier for Gage's birthday! He will be eight! Very exciting!
Wednesday, May 2, 2012
Still waiting...
I called the hospital and we discussed the appointment, however, nothing is set in stone. We are thinking maybe in July but that can still change in any direction.. We did get a package of paper work that I have been filling out. Hopefully, that part will be over soon! Other then that Pie has had a little pain but nothing major. She has even slept through the night all week!! She seems to have lots of energy and is having a great time helping around the house and riding her scooter.
Sunday, April 29, 2012
Had a Great Weekend
On Friday, Pie Pie helped bake and decorate a cake with Gage and I for her grandma's birthday. We also did a few crafts and just hung out and had a fun day together! Saturday we went to my mom's house for her birthday. Pie hung out with us in the barn while we shaved the sheepies!
Self Portrait! She was bored!! |
Silly Girl doing "yoga"! |
Thursday, April 26, 2012
Still Nothing..
We have yet to hear when the appointment will be schedualed.. I plan to give them until Monday before I start making calls to find out what is happening! I would really like to know when the appointment is so I can get everything lined up for when we are gone. It would also be nice to know how many days we will have to be there! But I guess we will find out soon enough!
Other then waiting, the kids and I have been making plans for the summer! We can't wait for camping, going for walks and just getting dirty!! Pie keeps asking if the alligator is out at the zoo! I told her when he is out it will be camping time! Hope he is still gone because the nights are still really cold!! Gage thinks we can handle the coldness! I don't! But we won't make it to the zoo this weekend anyways so we should be good!
Other then waiting, the kids and I have been making plans for the summer! We can't wait for camping, going for walks and just getting dirty!! Pie keeps asking if the alligator is out at the zoo! I told her when he is out it will be camping time! Hope he is still gone because the nights are still really cold!! Gage thinks we can handle the coldness! I don't! But we won't make it to the zoo this weekend anyways so we should be good!
Monday, April 23, 2012
Gathering Information
Well I spent most of Saturday chatting with a lady that has a twelve year old daughter that went through a similar experience as we are going through right now. Her daughter will be having surgery tomorrow morning at 6 so everyone please keep her in your thoughts and prayers! Anyways, she gave me a lot of good ideas and suggestions such as gathering a family medical history and writing a list of oddities about my Pie Pie.. She also suggested I write down things about my pregnancy with Pie. So yesterday I started to gather information from my husbands side of the family. I made it through his mom's side yesterday and his aunt helped me through his dad's side today! There really isn't much there that would be helpful that I am aware of but who knows! It might help the doctors. I plan to gather more information from my parents tomorrow. I just pray that whatever they find is something we can handle!
Today was also one of the first times that Pie was left out because she was unable to play with the other kids. They were playing on a trampoline and she isn't suppose to jump so she wasn't allowed over there. She cried for a while but got over it after she spotted a butterfly to follow! We went hunting! But I hope we hear something soon about her appointment.. I will keep you posted!
Today was also one of the first times that Pie was left out because she was unable to play with the other kids. They were playing on a trampoline and she isn't suppose to jump so she wasn't allowed over there. She cried for a while but got over it after she spotted a butterfly to follow! We went hunting! But I hope we hear something soon about her appointment.. I will keep you posted!
Friday, April 20, 2012
Confused...
So we met with the people from the Shriner's Hospital today. I thought this appointment would be a simple step in the right direction. However, I am now more confused then before. The doctor asked several of the same questions as Dr. S and he also had the same concerns and confusions with my Pie. So this doctor is scheduling a normal appointment for Pie to meet with the Shrine's Hospital Peds / ortho doctor. But, he also wants us to meet with a genetics doctor. He feels that Pie might have a genetic disorder that is causing a perthes like reaction in her hips. He said he might be wrong but that what I had told him and the xrays being so symmetrical makes him feel that it is something more then just perthes. I don't know what to think right now... I just know we will be on our way to Minneapolis again within the next month..
Tuesday, April 17, 2012
YIPPIE!!
OK! So I can breathe a little better now!! Dr. S just wrote telling me Pie looks like she is healing well! He also said that her left is healing a little faster then the right which might be why that one has some pain. I had also asked what percentage of her femur head was involved and he told me she had a significant case of perthes with 100% involved. That was scary to hear but with her age and all the exercises we have been doing it will help her to avoid a surgery and help her heal the best! This was such happy news!! However, there is still a very long road ahead of us!!
Monday, April 16, 2012
Still Not Sure..
The radiologist here has said there is minimal changes in her xrays but there are some changes. I am not sure what the changes mean so I have been waiting for an email from Dr. S but have yet to get one. I am hoping to hear from him soon but it is hard to say. I might have to try calling him if I don't hear something soon. However, I do think most of the change is very positive but want Dr. S to confirm this for us!!
But on a brighter note Pie Pie had an amazing weekend with some of our family coming over to have a pinterest craft weekend party! She really loved Saturday when it was a Grandma mommy daughter cousin day! Lots of laughs, great food and lasting memories!! I just wish I would have taken some more pictures! I also hope Pie doesn't expect that much fun everyday now! But I better start finding my house again!
But on a brighter note Pie Pie had an amazing weekend with some of our family coming over to have a pinterest craft weekend party! She really loved Saturday when it was a Grandma mommy daughter cousin day! Lots of laughs, great food and lasting memories!! I just wish I would have taken some more pictures! I also hope Pie doesn't expect that much fun everyday now! But I better start finding my house again!
Wednesday, April 11, 2012
New xrays
Pie was very brave and got her
new xrays! We had a great day and even went shopping at the mall for a little while!But back to the xrays... We don't know anything about them.... The radiologist hadn't finished his report by the time he was suppose to... I also have to email them off to Dr. Standard to see what he think! When I get more info I will inform you all but until then... I need sleep!!
new xrays! We had a great day and even went shopping at the mall for a little while!But back to the xrays... We don't know anything about them.... The radiologist hadn't finished his report by the time he was suppose to... I also have to email them off to Dr. Standard to see what he think! When I get more info I will inform you all but until then... I need sleep!!
Tuesday, April 10, 2012
I Hate the Night Before Appointments!!
Pie was great all day! She had lots of fun and is having a good time with brother and cousin! I, on the other hand, am a little worried about what tomorrow will bring. Pie has an appointment to check her hips again! It's always exciting and scary! We figure that we will hear good news but I can't help to worry! So everyone pray for more good news!!! I'll post tomorrow hopefully with new x-rays!
Sunday, April 8, 2012
Easter!!
We had a wonderful Easter! Everyone was healthy... minus my pink eye (thanks PIE!!) The bunny came and pooped out tons of candy for the kids! Then we had family over for a nice lunch! After everyone left Super dad took the kids out of the house so I could have a little alone time! When they got back we watched a little TV and then Pie and I went to play in her room! Gage and Dad had fun playing PS3! Pie pretended to be the bunny and hid candy all over! She thought it was great! Right now is sleepy time for the kids but they are not happy! I think the sugar high is starting to wear off! Hopefully Grandma comes soon to give them their Easter gift so they can go to bed ASAP!! Hope they are happier in the morning! Good night!!
Thursday, April 5, 2012
Gotta Love the Today Clinic!
So my poor Pie was up crying all night. Even when she was sleeping she was whimpering.. I thought her legs were bugging her. She wouldn't talk to me only cry more. Today she has been really sleepy and lazing around. She told me her legs hurt but not as bad as last night. Around 2:30 Pie had glossy eyes and on the way to get Gage she told me her eyes had drama! I didn't think much of it but by the time we got home you could see she had pink eye so I took her in to the Today clinic. They told me she had pink eye that was caused by her strep throat. I didn't know she even had strep.. Hopefully the med will help her feel better soon. I also have exciting news about getting her an appointment on April 20th with the Shriner's doctors that come to town. I wasn't sure if it was the right thing to do last time they were in town. Now I think it is smart to get her involved with them just in case she needs more help than what our doctor here in ND can handle! Hopefully more good news to come!
Wednesday, April 4, 2012
Please no more long nights!!!
So today was a lot of fun. We played and cleaned up the yard. We also went to see my sisters and brother inlaws place! The kids ran around and had a blast. However, on the way home Pie started to cry about her legs and is now sad because she hurts. I gave her a long warm bath but still seems a little sore. I am hoping she sleeps soon and feels better in the morning. I am glad that her next appointment is coming up but they always make me a little nervous.. I always wonder if I have done enough to help her..
Sunday, April 1, 2012
HA HA HA!!!
What a weekend! Wow! I think all the drama died down! So happy! Anyways, between basketball, cub scouts and itty bitty sports we have been busy! Gage also had a few friends over yesterday. They had a small mishap with my car and a basketball hoop.... Needless to say I get my yard cleaned by the three of them! Pie Pie also has been having fun with friends too! She played with her cousins most of Friday and on Saturday she got to hang out with her little boy friend at the game! She is trying to play pranks on us all today! She has been trying very hard to get us all! She came into the kitchen, grabbed my sun glasses and ran as fast as she could to my room! Giggling the whole way back she looked at me and said Happy Fools Day! lol!! My glasses were under the bed! She also has been telling me how my flip flops are untied! She also keeps stealing Gage's stuff and hidding it! Hope he finds it all!
Thank God she has been feeling good most of the weekend! Her legs are a little sore from playing so much but seems to be doing good now! Hopefully we will get good news on the 11th! She has an appointment that day! But I better get going! Lots to do... and find!!! Happy fools day!
Thank God she has been feeling good most of the weekend! Her legs are a little sore from playing so much but seems to be doing good now! Hopefully we will get good news on the 11th! She has an appointment that day! But I better get going! Lots to do... and find!!! Happy fools day!
Thursday, March 29, 2012
Last swim lesson for this session!
We sadly did not pass. She couldn't float on back and flutter kick? I don't know what that really is but I will be looking it up to make sure it isn't because of her perthes that has stopped this from being done! Gage also didn't pass. I think his worst thing he couldn't do was not listening to the teacher! Grrrr... I told him he could have done that right and he agreed that he should have tried harder.
I also wanted to take a moment on here and mention the Perthes momma drama and tell all of them that regardless of our differences it is all about our children in the end. We need to learn to stand together and not on top of each other! I know there is not just one to blame but several from what I have seen and hope we can work it all out! If not life will only get more lonely...
I also wanted to take a moment on here and mention the Perthes momma drama and tell all of them that regardless of our differences it is all about our children in the end. We need to learn to stand together and not on top of each other! I know there is not just one to blame but several from what I have seen and hope we can work it all out! If not life will only get more lonely...
Tuesday, March 27, 2012
What an amazing weekend!
Our weekend started on Thursday night after swim lessons were all done! At least that is when Pie Pie, Gage and I left with one of their aunts to go to Minneapolis. We stopped in Saux Centre Thursday night because that's where their dad was working! Pie Pie was so sore by the time we got there but she fell asleep with in an hour with a little medicine and an ice pack.. Once she was asleep everyone else was able to fall asleep rather quickly!
On Friday morning Pie, Gage and I went down and had some continental breakfast then went swimming for a few hours! A group of older women came in to do there morning water aerobics routine and they all kept telling me what wonderful children I had. They also couldn't get over how good Pie could swim all by herself! (We had forgotten her bubble in the car) After realizing the time, the kids and I ran to the room, showered and packed up all our stuff to head to Monticello. Once we got there we dropped our stuff in the hotel room and then headed to the Mall of America. We started off by getting something to eat then shopping to pass the time before we got to see my niece. The kids were bummed that we didn't take them on rides this time but Pie loved the Disney store and Gage liked looking at all the sports and video game stores! Around 6 we met up with my niece and her mom at the MOA and went and eat at Chipotle.
We then headed down to Sea Life. It was a wonderful place! The kids loved seeing the fish swimming all around them and all the different types! I loved the jelly fish room and the way they had it set up.
Once we finished at Sea Life we told my neice good-bye and headed back to the hotel for another long swim with the kids! This time I remembered Pie's bubble for swimming so she was able to swim much further without my help! However, she still liked to take it off so she could jump into the pool and touch the bottom! After swimming we decided it was time for bed! We all slept pretty good but Pie was a little restless.
Saturday morning was full of swimming too! Once that was out of our systems we went for pizza and my neice and her mom met us there! We talked for awhile then headed to the outlet mall in Albertville. Gage and Jesse were only up for shopping a little bit so they ended up back at the hotel a lot earlier then Pie, my neice, her mom and I! We shopped for hours and found lots of really cute clothes! We finished up shopping and headed back to Monticello. We found Jesse sleeping so we took Gage and went to an arcade and resterant for supper. It was fun for all!
After that my neice, Gage, Pie and I headed back to the hotel for a fun little sleepover! We went swimming, ate cookies, and watched the movie HOP. Well some of the movie!! We ended up falling alseep watching it!
On Sunday we knew our weekend was running out of time so we wanted to make the most of it! We went to the Sculpture Garden and the Como zoo. Both were free and great fun! We ended our time with my neice in Edina at a cute little burger place I fell in love with the last time I was in the cities!
We then parted ways and we headed back to the hotel for MORE swimming! After we were done we showered and the kids went to bed while I packed up our stuff to start heading home the next morning... I then fell asleep too!
The last day... Monday... we spent this eating breakfast at I Hop and putting our stuff in the car. It was sad leaving but it was also very exciting to be going home! The wind was insane so I drove straight through with only one stop for gas. When we got back home we dropped our stuff at home and headed out to get my dogs. One the way home we stopped for Mcd's. At home we watched tv and ate! If the storm wouldn't have gotten so bright and loud the kids would have fallen asleep after eating but instead they were both up tell almost midnight! Today Gage woke up easly but Pie was a pill to get up!
Gage is excited to show off the journal he wrote and all the brochures of the places we saw and pictures of his neice at school today. Pie is now enjoying watching her movie and laying around! Hope the energy level picks up a bit before the swimming test today!
On Friday morning Pie, Gage and I went down and had some continental breakfast then went swimming for a few hours! A group of older women came in to do there morning water aerobics routine and they all kept telling me what wonderful children I had. They also couldn't get over how good Pie could swim all by herself! (We had forgotten her bubble in the car) After realizing the time, the kids and I ran to the room, showered and packed up all our stuff to head to Monticello. Once we got there we dropped our stuff in the hotel room and then headed to the Mall of America. We started off by getting something to eat then shopping to pass the time before we got to see my niece. The kids were bummed that we didn't take them on rides this time but Pie loved the Disney store and Gage liked looking at all the sports and video game stores! Around 6 we met up with my niece and her mom at the MOA and went and eat at Chipotle.
We then headed down to Sea Life. It was a wonderful place! The kids loved seeing the fish swimming all around them and all the different types! I loved the jelly fish room and the way they had it set up.
Once we finished at Sea Life we told my neice good-bye and headed back to the hotel for another long swim with the kids! This time I remembered Pie's bubble for swimming so she was able to swim much further without my help! However, she still liked to take it off so she could jump into the pool and touch the bottom! After swimming we decided it was time for bed! We all slept pretty good but Pie was a little restless.
Saturday morning was full of swimming too! Once that was out of our systems we went for pizza and my neice and her mom met us there! We talked for awhile then headed to the outlet mall in Albertville. Gage and Jesse were only up for shopping a little bit so they ended up back at the hotel a lot earlier then Pie, my neice, her mom and I! We shopped for hours and found lots of really cute clothes! We finished up shopping and headed back to Monticello. We found Jesse sleeping so we took Gage and went to an arcade and resterant for supper. It was fun for all!
After that my neice, Gage, Pie and I headed back to the hotel for a fun little sleepover! We went swimming, ate cookies, and watched the movie HOP. Well some of the movie!! We ended up falling alseep watching it!
On Sunday we knew our weekend was running out of time so we wanted to make the most of it! We went to the Sculpture Garden and the Como zoo. Both were free and great fun! We ended our time with my neice in Edina at a cute little burger place I fell in love with the last time I was in the cities!
We then parted ways and we headed back to the hotel for MORE swimming! After we were done we showered and the kids went to bed while I packed up our stuff to start heading home the next morning... I then fell asleep too!
The last day... Monday... we spent this eating breakfast at I Hop and putting our stuff in the car. It was sad leaving but it was also very exciting to be going home! The wind was insane so I drove straight through with only one stop for gas. When we got back home we dropped our stuff at home and headed out to get my dogs. One the way home we stopped for Mcd's. At home we watched tv and ate! If the storm wouldn't have gotten so bright and loud the kids would have fallen asleep after eating but instead they were both up tell almost midnight! Today Gage woke up easly but Pie was a pill to get up!
Gage is excited to show off the journal he wrote and all the brochures of the places we saw and pictures of his neice at school today. Pie is now enjoying watching her movie and laying around! Hope the energy level picks up a bit before the swimming test today!
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